Any forward-thinking healthcare organization in this age of value-based care is struggling with patient engagement. The conference closes with one particularly engaged patient, who was diagnosed in January 2007 with Stage IV cancer and given the grimmest prognosis. Widely known as e-Patient Dave, he is a cancer patient and blogger who, in 2009, became a noted activist for healthcare transformation through participatory medicine and personal health data rights.
In this presentation, Dave will share how his personal journey to wellness inspired his mission to open healthcare information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed, and used by the patient. He will also discuss how this revolutionizing relationship between patients and providers will impact insurance, careers, quality of life, and the distribution of finances across the entire spectrum of health care.
“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one web site described it.
He received great treatment at Boston’s Beth Israel Deaconess Medical Center: his surgeon removed the extensive mess (laparoscopically!), and the Biologic Therapy program helped him participate in a clinical trial for the powerful but severe High Dosage Interleukin-2 (HDIL-2). His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink.
Today: Advocate and Activist
An accomplished speaker and writer in his professional life before his illness, today Dave is actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.
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